The Lord has overwhelmed me as I watch you all love Karis. I watch the Lord work in amazing, tender ways as He prompts you to pray for her. I have also seen a different kind of love, a unique love that God has given to certain people and it often brings me to tears. He has buried Karis in their hearts and given them an urgency and burden to pray as if they were fighting for their own lives, not the life of my 2 year old daughter.
Erin is one of those people. The first time Erin and Karis met, the Lord etched Karis on Erin’s heart and she has stayed there. Let me show you what I mean. Take a second to read this:
http://www.hotchocolatewithgod.com/2011/07/25/the-gift-of-a-breath-thoughts-from-erin-marie/
Have you ever poured out your heart for someone so much that your focus stops being about you? I believe that one reason I was chosen to be Karis’ mom was because I needed front row seats to watch Aslan on the move. I get to watch Him at work as you hold Karis in your arms and love her in a Jesus-way that YOU don’t even understand. I get to watch Him at work when you tell me you woke up four times in the middle of the night KNOWING you were supposed to pray for my child’s healing. I get to watch Him at work when people who have never fasted before in their lives go without eating because they are THAT desperate to see Jesus on the move in Karis’ life. What an incredible honor it has been to watch Him work in you and in Erin.
Today is Erin’s birthday.
Karis made a video just for Erin, but I couldn’t help but share it with you. It was longer than I intended but I couldn’t stand to cut anything. She had physical therapy today and did SO WELL! Praise the Lord! and happy birthday Erin Marie. You are loved.






Slower is better
As you may remember, in March we took Karis (and Kales) to her appointment at the Rare Disease clinic in Pittsburgh. The comprehensive report summary from all disciplines came back today. This report includes impressions from the doctor, audiologist, speech therapist, physical therapist, etc. Normally when we get these reports I take a deep breath and brace myself a little. Though the team is very compassionate, the report is, of course, very clinical. It’s hard to read that your child has the physical development of a 3 week old. It’s hard to hear that things maybe have regressed a little since the last visit. I almost didn’t read this one because we had discussed their recommendations for Karis in detail, but of course I read it anyway.
I was coming to the end of the summary and my eyes were bouncing off the lines, “In summary, Karis is a 2 year 8 month old with Krabbe…” yeah yeah, I know. Then my eyes bounced off this line:
“She presents with continued disease progression but at a slower rate.”
Wait…what? Bounce back. They said, in their very cold clinical report, that Karis’ disease progression was at a SLOWER RATE. Hey! That’s GOOD NEWS! And they ADMITTED IT! Yay God! Please continue to pray for good news. I sure would love the next report to say something like, “Medical miracle.”