Category Archives: From Katie

Doctor’s Appointment

Hi everyone! Just a quick update: Last week Karis saw her neurologist here in Jackson. It was a great appointment and the doctor had wonderful things to say about Karis, which was refreshing. She was particularly impressed by how calm and pleasant Karis is for having Krabbe. This neurologist has seen Krabbe in other patients […]

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Special Prayer Request

For those of you who don’t know, one of my biggest areas of interest is research. In fact, I’m pretty sure I’m the only student in my entire acclerated nursing program who actually enjoyed our graduate research class. I’m learning that the Lord gave me the desire and ability to conduct medical research for a […]

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Heaven Stands

Hi friends I haven’t talked about the status of enzyme therapy lately, so I thought I’d share. For those of you who don’t know, Krabbe disease is characterized by a missing enzyme, the GALC enzyme. The idea is that if we can replace that enzyme the person with the disease would essentially be cured. I […]

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Check it out!

I have created a video for those of you who would like to know more about our family and Karis’ history with Krabbe. You can view it under the “About” tab on this site. I hope it is helpful! Katie

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"Pray for Karis"

Hi friends! I have a lot of updates for you, so bear with me =) Karis Praise the Lord! Karis hasn’t thrown up in three days! I have prayed for a lot of wisdom on this issue and have started feeding her 4 ounces every three hours. This has been a great schedule for Miss […]

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February 16, 2010

Thank you so much for your prayers yesterday.  We have had a much better day today.  She has held most of her food down, praise the Lord!!  Her “personal” professional photographer, Keegan McWhorter of Admoni Photography, came over and took some updated pictures of Karis.  As much as Karis loves Keegan, she was not very […]

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