Category Archives: Uncategorized

Slower is better

As you may remember, in March we took Karis (and Kales) to her appointment at the Rare Disease clinic in Pittsburgh.  The comprehensive report summary from all disciplines came back today.  This report includes impressions from the doctor, audiologist, speech therapist, physical therapist, etc.  Normally when we get these reports I take a deep breath and [...]
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Erin

The Lord has overwhelmed me as I watch you all love Karis.  I watch the Lord work in amazing, tender ways as He prompts you to pray for her.  I have also seen a different kind of love, a unique love that God has given to certain people and it often brings me to tears.  [...]
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Stars on little legs

Hi friends, I’m sorry it has been so long since I have updated you on Karis.  Overall, she is doing very well, glory to God!  As the 29th approaches, there are a few specific requests that we would ask you to bring before the Lord on Karis’ behalf.  (Not that you only have to pray [...]
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The good fight

Hi friends, Karis seems to be fighting off another “something.”  I really feel like it might be sinus-related.  We have increased her fluid intake and are giving her Tylenol and Motrin regularly because her temperature was a little high.  Things seem to be calming down today after having extra fluid on board, but she could [...]
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At the House

Thanks to coughing, clear lungs, and the grace of God, we were able to bring Karis home on Friday.  She has done really well and her oxygen has stayed above 95% on room air.  (We have oxygen at home, but thankfully don’t have to use it!) Karis was doing SO well that we attempted to go to [...]
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Bright green. The unseen. Funny Mommy things.

For those of you who don’t know from Facebook, Karis has been in the hospital the past four nights due to pneumonia.  We caught it really early, so we think the infection is under control (after some antibiotic swapping).  The problem is, Karis is incredibly weak from all of the respiratory therapy and the pneumonia.  She just isn’t [...]
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